About Lilian
I’ve always been an empathetic person and someone who has enjoyed helping others. This is why the career pathway I chose as a young adult...
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The blog is about sharing my interests and hobbies and getting
to know me. as well as sharing my experiences with advocating.
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Oct 30, 2023
7 Tips on Being an Effective Carer
Being in a caring profession as a social worker and caring for a child/young person with a long term illness as a carer are two very...
Oct 18, 2023
RARESummit23
I was invited to attend the RAREsummit 2023 and talk about the long lasting impact of having a rare disease. Despite not being able to...
Jun 11, 2023
My Life, My Genetics - Genetic Inheritance
I was a part of Rare Youth Revolution's Genetics Project. I worked alongside Rare Youth Revolution to talk about different topics...
Mar 27, 2022
7 Stages of Managing a Long Term Illness
These stages relate to my own experiences of being diagnosed, processing and living with Lupus. I believe it can be used as a guide for...
Mar 18, 2019
World Young Rheumatic Diseases Day
Find out more about more about a new World Wide event to raise awareness awareness about the lives of young people living with rheumatic...
Jan 30, 2019
McPin YPAG
In December I became a member of the McPin Foundation Young People Advisory Group (YPAG). This is an organisation that through research...
Jan 30, 2019
Decade of Lupus
The following article was published in Lupus Uk's News & Views magazine,Winter 2018 edition. I've posted it on my website because this...
Jan 30, 2019
Cochrane Conference Edinburgh 2018
In September I was invited to the Cochrane Conference in Edinburgh, Scotland by the lovely Dr Erin Walker ( Patient Insight and...
Sep 13, 2018
RARE Revolution Magazine Article
I recently had the opportunity to write an article for the RARE Revolution Magazine. Click below to find out more. LINK TO FULL ARTICLE...
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