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The blog is about sharing my interests and hobbies and getting
to know me. as well as sharing my experiences with advocating.
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![Carer's Rights Day](https://static.wixstatic.com/media/ef7035_6f1a4a03a3004bccbcc66d66d8bc66c8~mv2.png/v1/fill/w_454,h_341,fp_0.50_0.50,q_95,enc_auto/ef7035_6f1a4a03a3004bccbcc66d66d8bc66c8~mv2.webp)
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![RARESummit23](https://static.wixstatic.com/media/ef7035_b744609398d74dddb0cc3a79ded3f277~mv2.jpeg/v1/fill/w_454,h_341,fp_0.50_0.50,q_90,enc_auto/ef7035_b744609398d74dddb0cc3a79ded3f277~mv2.webp)
Oct 18, 2023
RARESummit23
I was invited to attend the RAREsummit 2023 and talk about the long lasting impact of having a rare disease. Despite not being able to...
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![My Life, My Genetics - Genetic Inheritance](https://i.ytimg.com/vi/thINKHSyISU/maxresdefault.jpg)
Jun 11, 2023
My Life, My Genetics - Genetic Inheritance
I was a part of Rare Youth Revolution's Genetics Project. I worked alongside Rare Youth Revolution to talk about different topics...
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![7 Stages of Managing a Long Term Illness](https://static.wixstatic.com/media/ef7035_0412d6dbdb9646839c0cffc01253793b~mv2.jpg/v1/fill/w_454,h_341,fp_0.50_0.50,q_90,enc_auto/ef7035_0412d6dbdb9646839c0cffc01253793b~mv2.webp)
Mar 27, 2022
7 Stages of Managing a Long Term Illness
These stages relate to my own experiences of being diagnosed, processing and living with Lupus. I believe it can be used as a guide for...
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![Fave Song of 2019](https://static.wixstatic.com/media/ef7035_d30f8334ab5644e7aa418f95097104c0~mv2.jpeg/v1/fill/w_454,h_341,fp_0.50_0.50,q_90,enc_auto/ef7035_d30f8334ab5644e7aa418f95097104c0~mv2.webp)
Jan 3, 2020
Fave Song of 2019
Lost in the fire - Gesaffelstien ft. The Weeknd Heartless - The Weeknd Con altura - Rosalía On My Way - Prettymuch Nowhere to Run - Ryan...
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